I just added a sign up area to the How You Can Help page that gives you an idea of when my good days are, and can have visitors and guests. I learned today that even a simple lunch can wear me out, so I’d prefer to keep the number of visitors at at time minimal, noting there are always exceptions to rules.
The time slots list 11:30am-4:30pm, but this is totally flexible (in most cases), and absolutely does NOT mean the entire time. This time block is when I find I lose my steam during the day, so it’s nice to have a human interaction boost. Want to only visit for an hour? Totally fine. Want to go jump around a trampoline gym for two? Also doable. The point is, HUMANS PLEASE.
In other news, I feel way better than I did yesterday. I’m definitely on my upswing to Friday’s infusion. I’m curious to see if I have similar timing of sucktitude with only gemzar, versus last week’s carboplastin + gemzar. Maybe it’ll be less, but even if it’s roughly the same timing, I’ll have 9 whole days of good feelings.
My biggest issue these days is appetite. I have none and take no pleasure in eating. I’ve reached out to my doctor to see what he recommends as far as high caloric dense foods, but if any of you have ideas, lay ’em on me. Whole milk and real butter, and all.